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Before Lacey:
Joe was diagnosed with Autism when he was two and a half
years old. Children with Autism are commonly not diagnosed until around this
age and often have other associated problems – in Joe’s case delayed
development, learning difficulties and reduced muscle tone.
As a result of the reduced muscle tone, Joe was also unable to walk until he
was over two years old, so exercise to help build up the muscles is very
important. But, because of the behavioural issues associated with Autism
this was extremely difficult because it was almost impossible to take Joe
out away from the home.
For example, whenever Joe was taken into a Supermarket he would find the
environment very overwhelming or even frightening, but because of his Autism
he would be unable to express this, so it often resulted in a severe temper
tantrum. And this would be almost impossible to resolve because he also had
no understanding and could not communicate his feelings. |
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In common with all children with Autism, Joe
doesn’t understand danger, finds it difficult to express himself and
interact and doesn’t respond well to commands. In the past this has
frequently caused him to experience severe frustration which would then lead
to uncontrollable behaviour - if he was in a situation that he was unhappy
with, uncomfortable with or frightened by. In such situations, Joe would
need to be restrained, often injuring his mum in the process even hurting
himself because he was unable to express his feelings. This could take the
form of pulling his own hair, scratching his face or banging his head.
Safety for Joe away from the home was perhaps the most worrying problem of
all. It was almost impossible for Paula (his mum) to walk along the street
holding Joe’s hand. He didn’t like the touch, would pull in the opposite
direction and frequently try to bolt. He would look ahead but not down,
often falling and hurting himself or alternatively completely refuse to move
and as a result he needed to be restrained in a pushchair or trolley.
Joe’s Autism affected the whole family. They were unable to go out as a
family, couldn’t visit friends or go to shops or restaurants. In fact they
were unable to socialise at all to the extent that when Paula wanted to
taker her older son for a long weekend in Blackpool, Joe had to be left at
home with his grandmother.
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Finding LaceyWhen Paula heard about an
organisation in Canada that had been successfully training dogs for children
with Autism and the amazing safety benefits they could offer, she was
determined to find a similar solution for Joe.
She immediately contacted all the organisations that she was aware of in the
UK that trained assistance dogs but initially with no success. Then, by
chance, she was put in touch with Rita Howson Support Dogs’ Head of Training
and Rita, on hearing her story, agreed to help her to try and find a
suitable dog for Joe and to try and train the UK’s first partnership.
But, before Joe could be partnered with a trained Autism Assistance Dog it
was important for him to be introduced into the company of the type of dog
he would eventually be partnered with. Forfar Guide Dogs is close to where
Paula and Joe live in Dundee and they were more than happy for Joe to go
along and meet and play with some of their dogs so Paula could see how he
would react to them.
Once a week Paula and Joe visited the dogs. They were introduced to him one
at a time so that he could interact with them and experience their different
temperaments, and it soon became clear that Joe loved to run and play with
the dogs.
After many months of searching, Support Dogs selected a beautiful yellow
Labrador called Lacey when it quickly became clear that she had all the
necessary attributes to be an ideal Autism Assistance Dog for Joe. Lacey was
introduced to him and a noticeable bond between the two formed almost
immediately, Lacey staying close to Joe and following him with her eyes
wherever he went.
It was in this way that the UK’s first Autism Assistance partnership was
formed. Rita agreed to train Lacey and almost a year later she was placed as
a permanent member of Paula and Joe’s family.
From day one the partnership has been a huge success!
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Joe and Lacey
From the very first time that Paula took Joe out with Lacey
the transformation to all their lives has been incredible.
Paula had previously tried all kinds of toddler harnesses, to enable her to
take Joe out, but he wouldn’t accept any of them. But he accepted the belt
that attaches him to Lacey and her harness straight away and even on their
first outing together he was like a different boy.
Paula is the facilitator in the partnership. She commands Lacey and through
this is able to take Joe out safely, even to crowded public places, which
would have been impossible before.
Joe is attached to Lacey’s harness (see pictures) and the dog is trained to
make sure he cannot bolt and place himself in danger. For example, when they
leave the house if Paula turns right and Joe tries to run off to the left,
Lacey braces her body and keeps walking alongside Paula and Joe follows. He
no longer has to endure situations such as having his hand held, which are
very uncomfortable for him, but because of the close bond he has formed with
Lacey is usually happy to walk calmly alongside her.
The remarkable bond that Joe and Lacey have formed, and the love he feels
for the dog, have transformed his life in innumerable ways. He now seldom
experiences fear and frustration, when away from home, so temper tantrums
are now a rarity. He hasn’t hurt himself in over six months and his
communication skills have improved beyond all recognition.
Before Lacey Joe could only say about 10 words, now he can construct whole
sentences. He communicates with and through the dog as her steadying and
reassuring presence when they are out in public has enabled him to interact
with other people.
Previously people were very unlikely to communicate with Joe because he
appeared very unapproachable, but now people often stop and ask him his
dog’s name and Joe is able to look them in the face and sometimes even
answers. Before Lacey he didn’t know the word mum or what it meant, now he
does, he also knows and refers to Lacey by name.
At the centre of this partnership is a remarkable dog who has formed a
unique and intuitive bond with Joe. Her influence is immense and her ability
to understand Joe is such that now Paula can no longer imagine how families
with children with Autism cope without a dog like Lacey.
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The Future:
Now that the initial
objective of securing Joe’s safety when out in public has been achieved,
Lacey is about to embark on further training. This will see her learn to
perform additional safety tasks such as finding Joe if he were to manage to
escape - either from the house or when out for a walk. She will also learn
to block Joe with her body so that if she becomes aware of him placing
himself in danger she will stand in front of him and push him back. This
training could help with many situations such as approaching a hot kettle,
standing on the top of the stairs (Joe is unable to walk down stairs because
of his poor muscle tone) or if he were outside and tried to run into the
road.
There are also tasks that Lacey can perform inside the home to aid Joe’s
ability to perform everyday activities. Joe doesn’t like the pressure of
learning new things but because of the love he feels for Lacey and the
pleasure of learning to do things for her, such as grooming and the reason
that this is necessary he could learn to ‘groom’ himself.
Lacey is now truly a part of Joe and Paula’s family. She is Joe’s friend and
they have found a fine balance between the working dog that performs a vital
function and a much loved family pet.
Paula has also learned that creating a successful partnership with an Autism
Assistance Dog is a big commitment and there are no quick solutions. The
partnership is a constant learning process. There are no overnight solutions
– it takes time to make it work.
Most of all she is immensely grateful for the constant support they receive
from Support Dogs and hopes that the launch of this appeal will enable
families across the UK to enjoy the live changing benefits that they have
experienced.
Paula says: “Rita and the team at Support Dogs are truly amazing. They are
always there for us, even if it’s just to chat on the phone and help me to
work through even a small problem.”
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