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Before Lacey:
Joe was diagnosed with Autism when he was two and a half years old.
Children with Autism are commonly not diagnosed until around this age and
often have other associated problems – in Joe’s case delayed development,
learning difficulties and reduced muscle tone.
As a result of the reduced muscle tone, Joe was also unable to walk until
he was over two years old, so exercise to help build up the muscles is
very important. But, because of the behavioural issues associated with
Autism this was extremely difficult because it was almost impossible to
take Joe out away from the home.
For example, whenever Joe was taken into a Supermarket he would find the
environment very overwhelming or even frightening, but because of his
Autism he would be unable to express this, so it often resulted in a
severe temper tantrum. And this would be almost impossible to resolve
because he also had no understanding and could not communicate his
feelings.
In common with all children with Autism, Joe doesn’t understand danger,
finds it difficult to express himself and interact and doesn’t respond
well to commands. In the past this has frequently caused him to experience
severe frustration which would then lead to uncontrollable behaviour - if
he was in a situation that he was unhappy with, uncomfortable with or
frightened by. In such situations, Joe would need to be restrained, often
injuring his mum in the process even hurting himself because he was unable
to express his feelings. This could take the form of pulling his own hair,
scratching his face or banging his head.
Safety for Joe away from the home was perhaps the most worrying problem of
all. It was almost impossible for Paula (his mum) to walk along the street
holding Joe’s hand. He didn’t like the touch, would pull in the opposite
direction and frequently try to bolt. He would look ahead but not down,
often falling and hurting himself or alternatively completely refuse to
move and as a result he needed to be restrained in a pushchair or trolley.
Joe’s Autism affected the whole family. They were unable to go out as a
family, couldn’t visit friends or go to shops or restaurants. In fact they
were unable to socialise at allto the extent that when Paula wanted to
taker her older son for a long weekend in Blackpool, Joe had to be left at
home with his grandmother.
Finding Lacey:
When Paula heard about an organisation in Canada that had been
successfully training dogs for children with Autism and the amazing safety
benefits they could offer, she was determined to find a similar solution
for Joe.
She immediately contacted all the organisations that she was aware of in
the UK that trained assistance dogs but initially with no success. Then,
by chance, she was put in touch with Rita Howson Support Dogs’ Head of
Training and Rita, on hearing her story, agreed to help her to try and
find a suitable dog for Joe and to try and train the UK’s first
partnership.
But, before Joe could be partnered with a trained Autism Assistance Dog it
was important for him to be introduced into the company of the type of dog
he would eventually be partnered with. Forfar Guide Dogs is close to where
Paula and Joe live in Dundee and they were more than happy for Joe to go
along and meet and play with some of their dogs so Paula could see how he
would react to them.
Once a week Paula and Joe visited the dogs. They were introduced to him
one at a time so that he could interact with them and experience their
different temperaments, and it soon became clear that Joe loved to run and
play with the dogs.
After many months of searching, Support Dogs selected a beautiful yellow
Labrador called Lacey when it quickly became clear that she had all the
necessary attributes to be an ideal Autism Assistance Dog for Joe. Lacey
was introduced to him and a noticeable bond between the two formed almost
immediately, Lacey staying close to Joe and following him with her eyes
wherever he went.
It was in this way that the UK’s first Autism Assistance partnership was
formed. Rita agreed to train Lacey and almost a year later she was placed
as a permanent member of Paula and Joe’s family.
From day one the partnership has been a huge success!
Joe and Lacey:
From the very first time that Paula took Joe out with Lacey the
transformation to all their lives has been incredible.
Paula had previously tried all kinds of toddler harnesses, to enable her
to take Joe out, but he wouldn’t accept any of them. But he accepted the
belt that attaches him to Lacey and her harness straight away and even on
their first outing together he was like a different boy.
Paula is the facilitator in the partnership. She commands Lacey and
through this is able to take Joe out safely, even to crowded public
places, which would have been impossible before.
Joe is attached to Lacey’s harness (see pictures) and the dog is trained
to make sure he cannot bolt and place himself in danger. For example, when
they leave the house if Paula turns right and Joe tries to run off to the
left, Lacey braces her body and keeps walking alongside Paula and Joe
follows. He no longer has to endure situations such as having his hand
held, which are very uncomfortable for him, but because of the close bond
he has formed with Lacey is usually happy to walk calmly alongside her.
The remarkable bond that Joe and Lacey have formed, and the love he feels
for the dog, have transformed his life in innumerable ways. He now seldom
experiences fear and frustration, when away from home, so temper tantrums
are now a rarity. He hasn’t hurt himself in over six months and his
communication skills have improved beyond all recognition.
Before Lacey Joe could only say about 10 words, now he can construct whole
sentences. He communicates with and through the dog as her steadying and
reassuring presence when they are out in public has enabled him to
interact with other people.
Previously people were very unlikely to communicate with Joe because he
appeared very unapproachable, but now people often stop and ask him his
dog’s name and Joe is able to look them in the face and sometimes even
answers. Before Lacey he didn’t know the word mum or what it meant, now he
does, he also knows and refers to Lacey by name.
At the centre of this partnership is a remarkable dog who has formed a
unique and intuitive bond with Joe. Her influence is immense and her
ability to understand Joe is such that now Paula can no longer imagine how
families with children with Autism cope without a dog like Lacey.
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